131828 20240319081032.0 doi 10.1016/j.msard.2022.103969 sideral 137005 ART-2022-137005 eng Castillo-Triviño, Tamara Long-term prognosis communication preferences in early-stage relapsing-remitting multiple sclerosis 2022 Access copy available to the general public Unrestricted Background Multiple sclerosis is one of the most common causes of neurological disability in young adults with major consequences for their future lives. Improving communication strategies on prognosis may help patients deal with the disease and adjust their long-term life goals. However, there is limited information on patients’ preferences of long-term prognosis (LTP) communication and associated factors. Objective The aim of this study was to describe patients’ preferences and assess the factors associated with LTP communication preferences in early-stage relapsing-remitting multiple sclerosis (RRMS) patients. Methods A multicenter, non-interventional study was conducted. Adult patients with a diagnosis of RRMS, a disease duration from first attack ≤ 3 years, and an Expanded Disability Status Scale (EDSS) score of 0-5.5 were included. The Prognosis in MS questionnaire was used to assess how much patients want to know about their LTP. Different patient-reported measures were administered to gather information on symptom severity, pain, fatigue, mood/anxiety, quality of life, stigma, illness perception, feeling of hopelessness, self-efficacy, information avoidance and coping strategies. Cognition was assessed using the Symbol Digit Modalities Test (SDMT). A multivariate logistic regression analysis was performed to assess the association between LTP information preference and demographic and clinical characteristics, as well as patients’ perspectives. Results A total of 189 patients were included (mean age: 36.1  ±  9.4 years, 71.4% female, mean disease duration: 1.2  ±  0.8 years). Median EDSS score was 1.0 (IQR = 0.0-2.0). A proportion of 68.5% (n  =  126) of patients had never discussed LTP with their neurologists, whereas 69.2% (n = 126) reported interest in knowing it (73.5% at diagnosis). Bivariate analyses suggested that patients were significantly more likely to have higher LTP information preferences if they were male and had a lower SDMT score. Male gender and a lower SDMT score were predictors of LTP information preferences. Conclusions Patients with early-stage RRMS want to discuss their LTP shortly after diagnosis. Understanding the factors involved may be useful to design individualized communication strategies. info:eu-repo/semantics/openAccess by-nc-nd http://creativecommons.org/licenses/by-nc-nd/3.0/es/ 4.0 2022 CLINICAL NEUROLOGY 69 / 212 = 0.325 2022 Q2 T1 0.92 2022 Medicine (miscellaneous) 2022 Q1 Neurology (clinical) 2022 Q2 Neurology 2022 Q2 5.6 2022 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Gómez-Ballesteros, Rocío Borges, Mónica Martín-Martínez, Jesús Sotoca, Javier Alonso, Ana Caminero, Ana B. Borrega, Laura Sánchez-Menoyo, José L. Barrero-Hernández, Francisco J. Calles, Carmen Brieva, Luis Blasco-Quílez, María R. Dotor García-Soto, Julio del Campo-Amigo, María Navarro-Cantó, Laura Agüera, Eduardo Garcés-Redondo, Moisés Universidad de Zaragoza (orcid)0000-0002-1756-5492 Carmona, Olga Gabaldón-Torres, Laura Forero, Lucía Hervás, Mariona Mauriño, Jorge Sainz de la Maza, Susana 1007 610 Universidad de Zaragoza Dpto. Medicina, Psiqu. y Derm. Area Medicina 64 (2022), 103969 [7 pp.] Mult. scler. relat. disord. Multiple Sclerosis and Related Disorders 2211-0348 464482 http://zaguan.unizar.es/record/131828/files/texto_completo.pdf Versión publicada 2287679 http://zaguan.unizar.es/record/131828/files/texto_completo.jpg?subformat=icon icon Versión publicada oai:zaguan.unizar.es:131828 articulos driver 2024-03-18-17:10:35 ARTICLE