000132216 001__ 132216 000132216 005__ 20250908131408.0 000132216 0247_ $$2doi$$a10.1177/26323524231225249 000132216 0248_ $$2sideral$$a137409 000132216 037__ $$aART-2024-137409 000132216 041__ $$aeng 000132216 100__ $$aRietjens, Judith A. C. 000132216 245__ $$aImproving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project 000132216 260__ $$c2024 000132216 5060_ $$aAccess copy available to the general public$$fUnrestricted 000132216 5203_ $$aBackground: Patients with cancer often have to make complex decisions about treatment, with the options varying in risk profiles and effects on survival and quality of life. Moreover, inefficient care paths make it hard for patients to participate in shared decision-making. Data-driven decision-support tools have the potential to empower patients, support personalized care, improve health outcomes and promote health equity. However, decision-support tools currently seldom consider quality of life or individual preferences, and their use in clinical practice remains limited, partly because they are not well integrated in patients’ care paths. Aim and objectives: The central aim of the 4D PICTURE project is to redesign patients’ care paths and develop and integrate evidence-based decision-support tools to improve decision-making processes in cancer care delivery. This article presents an overview of this international, interdisciplinary project. Design, methods and analysis: In co-creation with patients and other stakeholders, we will develop data-driven decision-support tools for patients with breast cancer, prostate cancer and melanoma. We will support treatment decisions by using large, high-quality datasets with state-of-the-art prognostic algorithms. We will further develop a conversation tool, the Metaphor Menu, using text mining combined with citizen science techniques and linguistics, incorporating large datasets of patient experiences, values and preferences. We will further develop a promising methodology, MetroMapping, to redesign care paths. We will evaluate MetroMapping and these integrated decision-support tools, and ensure their sustainability using the Nonadoption, Abandonment, Scale-Up, Spread, and Sustainability (NASSS) framework. We will explore the generalizability of MetroMapping and the decision-support tools for other types of cancer and across other EU member states. Ethics: Through an embedded ethics approach, we will address social and ethical issues. Discussion: Improved care paths integrating comprehensive decision-support tools have the potential to empower patients, their significant others and healthcare providers in decision-making and improve outcomes. This project will strengthen health care at the system level by improving its resilience and efficiency. 000132216 536__ $$9info:eu-repo/grantAgreement/EC/HORIZON EUROPE/101057332/EU/Design-based Data-Driven Decision-support Tools: Producing Improved Cancer Outcomes Through User-Centred Research/4D PICTURE 000132216 540__ $$9info:eu-repo/semantics/openAccess$$aby$$uhttp://creativecommons.org/licenses/by/3.0/es/ 000132216 592__ $$a0.697$$b2024 000132216 593__ $$aAdvanced and Specialized Nursing$$c2024$$dQ1 000132216 655_4 $$ainfo:eu-repo/semantics/article$$vinfo:eu-repo/semantics/publishedVersion 000132216 700__ $$aGriffioen, Ingeborg 000132216 700__ $$0(orcid)0000-0002-7660-3508$$aSierra-Pérez, Jorge$$uUniversidad de Zaragoza 000132216 700__ $$aSroczynski, Gaby 000132216 700__ $$aSiebert, Uwe 000132216 700__ $$aBuyx, Alena 000132216 700__ $$aPeric, Barbara 000132216 700__ $$aSvane, Inge Marie 000132216 700__ $$aBrands, Jasper B. P. 000132216 700__ $$aSteffensen, Karina D. 000132216 700__ $$0(orcid)0000-0002-3283-1277$$aRomero Piqueras, Carlos$$uUniversidad de Zaragoza 000132216 700__ $$aHedayati, Elham 000132216 700__ $$aKarsten, Maria M. 000132216 700__ $$aCouespel, Norbert 000132216 700__ $$aAkoglu, Canan 000132216 700__ $$0(orcid)0000-0002-8026-7391$$aPazo-Cid, Roberto$$uUniversidad de Zaragoza 000132216 700__ $$aRayson, Paul 000132216 700__ $$aLingsma, Hester F. 000132216 700__ $$aSchermer, Maartje H. N. 000132216 700__ $$aSteyerberg, Ewout W. 000132216 700__ $$aPayne, Sheila A. 000132216 700__ $$aKorfage, Ida J. 000132216 700__ $$aStiggelbout, Anne M. 000132216 700__ $$aOliveira, Claudia Cruz 000132216 700__ $$aSemino, Elena 000132216 700__ $$aRoobol, Monique 000132216 700__ $$0(orcid)0000-0001-6352-2023$$aLópez-Forniés, Ignacio$$uUniversidad de Zaragoza 000132216 700__ $$aKunneman, Marleen 000132216 700__ $$aVerberne, Suzan 000132216 700__ $$aKuld, Anne 000132216 700__ $$avan Mulligen, Erik M. 000132216 700__ $$aKnudsen, Bettina Mølri 000132216 700__ $$aKors, Jan A. 000132216 700__ $$aVenderbos, Lionne D. F. 000132216 700__ $$aDonia, Marco 000132216 700__ $$aKoppert, Linetta B. 000132216 700__ $$aNwosu, Amara C. 000132216 700__ $$aVerheul, Elfi M. 000132216 700__ $$0(orcid)0000-0003-0420-6746$$aSañudo, Yeray$$uUniversidad de Zaragoza 000132216 700__ $$aKremer, Marie 000132216 700__ $$0(orcid)0000-0001-6452-7627$$aGracia, Jorge$$uUniversidad de Zaragoza 000132216 700__ $$0(orcid)0000-0002-9159-4988$$aAntón, Antonio$$uUniversidad de Zaragoza 000132216 700__ $$aSchreijer, Maud 000132216 700__ $$aBangma, Chris 000132216 700__ $$aHartman, Laura 000132216 700__ $$avan Klaveren, David 000132216 700__ $$0(orcid)0000-0002-8953-0600$$aAiger Valles, Monserrat$$uUniversidad de Zaragoza 000132216 700__ $$0(orcid)0000-0002-6734-8808$$aPitarch, Lucia$$uUniversidad de Zaragoza 000132216 700__ $$aHallsson, Lara R. 000132216 700__ $$aWouters, Michel 000132216 700__ $$aKapiteijn, Ellen 000132216 700__ $$ade Glas, Nienke 000132216 700__ $$avan Buchem, Marieke 000132216 700__ $$aDoornkamp, Frank 000132216 700__ $$aBorštnar, Simona 000132216 700__ $$aWee, Leonard 000132216 700__ $$aPross, Therese 000132216 700__ $$aSilva, Marta 000132216 700__ $$aVenegoni, Enea 000132216 700__ $$aLorenzo, Nora 000132216 700__ $$aWallberg, Susanne 000132216 700__ $$aDankl, Kathrina 000132216 700__ $$ade Jesús, Teresa Puértolas 000132216 700__ $$aRomera, Juan Lao 000132216 700__ $$aPons, Paula Gomila 000132216 700__ $$aSignerez, Paula Melo 000132216 700__ $$aSecomandi, Fernando 000132216 700__ $$aSnelders, Dirk: on behalf of 4D Picture Consortium 000132216 7102_ $$14009$$2740$$aUniversidad de Zaragoza$$bDpto. Psicología y Sociología$$cÁrea Psicología Social 000132216 7102_ $$11007$$2610$$aUniversidad de Zaragoza$$bDpto. Medicina, Psiqu. y Derm.$$cArea Medicina 000132216 7102_ $$15002$$2305$$aUniversidad de Zaragoza$$bDpto. Ingeniería Diseño Fabri.$$cÁrea Expresión Gráfica en Ing. 000132216 7102_ $$15007$$2570$$aUniversidad de Zaragoza$$bDpto. Informát.Ingenie.Sistms.$$cÁrea Lenguajes y Sistemas Inf. 000132216 773__ $$g18 (2024), [15 pp.]$$tPalliative Care and Social Practice$$x2632-3524 000132216 8564_ $$s522996$$uhttps://zaguan.unizar.es/record/132216/files/texto_completo.pdf$$yVersión publicada 000132216 8564_ $$s2992469$$uhttps://zaguan.unizar.es/record/132216/files/texto_completo.jpg?subformat=icon$$xicon$$yVersión publicada 000132216 909CO $$ooai:zaguan.unizar.es:132216$$particulos$$pdriver 000132216 951__ $$a2025-09-08-12:49:57 000132216 980__ $$aARTICLE