000134881 001__ 134881
000134881 005__ 20240509135608.0
000134881 0247_ $$2doi$$a10.5014/ajot.2024.050528
000134881 0248_ $$2sideral$$a138425
000134881 037__ $$aART-2024-138425
000134881 041__ $$aeng
000134881 100__ $$0(orcid)0000-0003-3295-6587$$aGonzalo-Ciria, Laura
000134881 245__ $$aDifficulties Fulfilling Self-Care Needs Among Family Caregivers: An Observational Study
000134881 260__ $$c2024
000134881 5060_ $$aAccess copy available to the general public$$fUnrestricted
000134881 5203_ $$aImportance: Assuming the care of a family member with a disability or chronic illness constitutes a health risk factor for caregivers, who frequently overlook their own self-care.
Objective: To analyze the self-care activities (SCAs) among caregivers of a family member with a disability or chronic illness and assess the impact on their satisfaction and quality of life (QoL).
Design: Descriptive, cross-sectional, analytic study.
Setting: Community.
Participants: Five hundred caregivers of family members with a disability or chronic illness in the city of Zaragoza, Spain.
Outcomes and Measures: The family caregivers’ occupational performance and satisfaction were assessed with the Canadian Occupational Performance Measure, and their QoL was assessed with the World Health Organization—Quality of Life.
Results: In total, 32.8% of family caregivers had difficulty in all activities related to self-care, 46.6% had difficulty sleeping and resting, 31.6% had difficulty receiving health-related treatments, and 31.2% had difficulty with physical exercise. Women and younger family caregivers showed greater impairment in self-care. Occupational performance, satisfaction, and QoL worsened as the number of affected activities increased.
Conclusions and Relevance: Caring for a family member with a disability or chronic illness has a negative impact on the SCAs of caregivers, especially among female caregivers and those of younger age. Caregiving is also associated with lower occupational performance, satisfaction, and QoL.
Plain-Language Summary: Caring for a family member with a disability or chronic illness can become a health risk for caregivers, who frequently ignore their own self-care. The study results found that women and younger family caregivers showed a greater decline in self-care. This study provides information to help occupational therapists to work with family caregivers to prevent a decline in their self-care and improve their quality of life.
000134881 540__ $$9info:eu-repo/semantics/openAccess$$aAll rights reserved$$uhttp://www.europeana.eu/rights/rr-f/
000134881 655_4 $$ainfo:eu-repo/semantics/article$$vinfo:eu-repo/semantics/acceptedVersion
000134881 700__ $$0(orcid)0000-0003-0335-0404$$aGascón-Catalán, Ana$$uUniversidad de Zaragoza
000134881 700__ $$0(orcid)0000-0002-0137-3672$$aLaborda-Soriano, Ana A.$$uUniversidad de Zaragoza
000134881 700__ $$0(orcid)0000-0003-2587-6765$$aCambra-Aliaga, Alba$$uUniversidad de Zaragoza
000134881 700__ $$0(orcid)0000-0003-4513-6801$$aRuiz-Garrós, María C.$$uUniversidad de Zaragoza
000134881 700__ $$aPerez-de-Heredia-Torres, Marta
000134881 7102_ $$11006$$2255$$aUniversidad de Zaragoza$$bDpto. Fisiatría y Enfermería$$cÁrea Enfermería
000134881 7102_ $$11006$$2413$$aUniversidad de Zaragoza$$bDpto. Fisiatría y Enfermería$$cÁrea Fisioterapia
000134881 773__ $$g78, 3 (2024), [9 pp.]$$pAm. j. occup. ther.$$tAMERICAN JOURNAL OF OCCUPATIONAL THERAPY$$x0272-9490
000134881 8564_ $$s912660$$uhttps://zaguan.unizar.es/record/134881/files/texto_completo.pdf$$yPostprint
000134881 8564_ $$s2233988$$uhttps://zaguan.unizar.es/record/134881/files/texto_completo.jpg?subformat=icon$$xicon$$yPostprint
000134881 909CO $$ooai:zaguan.unizar.es:134881$$particulos$$pdriver
000134881 951__ $$a2024-05-09-13:42:06
000134881 980__ $$aARTICLE