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<dc:dc xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:invenio="http://invenio-software.org/elements/1.0" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd"><dc:identifier>doi:10.5014/ajot.2024.050528</dc:identifier><dc:language>eng</dc:language><dc:creator>Gonzalo-Ciria, Laura</dc:creator><dc:creator>Gascón-Catalán, Ana</dc:creator><dc:creator>Laborda-Soriano, Ana A.</dc:creator><dc:creator>Cambra-Aliaga, Alba</dc:creator><dc:creator>Ruiz-Garrós, María C.</dc:creator><dc:creator>Perez-de-Heredia-Torres, Marta</dc:creator><dc:title>Difficulties Fulfilling Self-Care Needs Among Family Caregivers: An Observational Study</dc:title><dc:identifier>ART-2024-138425</dc:identifier><dc:description>Importance: Assuming the care of a family member with a disability or chronic illness constitutes a health risk factor for caregivers, who frequently overlook their own self-care.
Objective: To analyze the self-care activities (SCAs) among caregivers of a family member with a disability or chronic illness and assess the impact on their satisfaction and quality of life (QoL).
Design: Descriptive, cross-sectional, analytic study.
Setting: Community.
Participants: Five hundred caregivers of family members with a disability or chronic illness in the city of Zaragoza, Spain.
Outcomes and Measures: The family caregivers’ occupational performance and satisfaction were assessed with the Canadian Occupational Performance Measure, and their QoL was assessed with the World Health Organization—Quality of Life.
Results: In total, 32.8% of family caregivers had difficulty in all activities related to self-care, 46.6% had difficulty sleeping and resting, 31.6% had difficulty receiving health-related treatments, and 31.2% had difficulty with physical exercise. Women and younger family caregivers showed greater impairment in self-care. Occupational performance, satisfaction, and QoL worsened as the number of affected activities increased.
Conclusions and Relevance: Caring for a family member with a disability or chronic illness has a negative impact on the SCAs of caregivers, especially among female caregivers and those of younger age. Caregiving is also associated with lower occupational performance, satisfaction, and QoL.
Plain-Language Summary: Caring for a family member with a disability or chronic illness can become a health risk for caregivers, who frequently ignore their own self-care. The study results found that women and younger family caregivers showed a greater decline in self-care. This study provides information to help occupational therapists to work with family caregivers to prevent a decline in their self-care and improve their quality of life.</dc:description><dc:date>2024</dc:date><dc:source>http://zaguan.unizar.es/record/134881</dc:source><dc:doi>10.5014/ajot.2024.050528</dc:doi><dc:identifier>http://zaguan.unizar.es/record/134881</dc:identifier><dc:identifier>oai:zaguan.unizar.es:134881</dc:identifier><dc:identifier.citation>AMERICAN JOURNAL OF OCCUPATIONAL THERAPY 78, 3 (2024), [9 pp.]</dc:identifier.citation><dc:rights>All rights reserved</dc:rights><dc:rights>http://www.europeana.eu/rights/rr-f/</dc:rights><dc:rights>info:eu-repo/semantics/closedAccess</dc:rights></dc:dc>

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