000135754 001__ 135754
000135754 005__ 20240705134227.0
000135754 0247_ $$2doi$$a10.1016/j.ridd.2017.09.018
000135754 0248_ $$2sideral$$a138744
000135754 037__ $$aART-2017-138744
000135754 041__ $$aeng
000135754 100__ $$0(orcid)0000-0002-0235-3104$$aEspín-Tello, Sandra Martina
000135754 245__ $$aHow available to European children and young people with cerebral palsy are features of their environment that they need?
000135754 260__ $$c2017
000135754 5203_ $$aBackground
The UN Convention on the Rights of Persons with Disabilities requires accessibility to the physical and social environments. However, individuals with cerebral palsy (CP) have many difficulties in accessing the environment they need for functional independence and social inclusion.
Aims
To examine the availability of environmental features which children with CP need for optimal participation, and whether availability changed for them between ages 8–12 and 13–17 years.
Methods
The sample is the 594 children with CP, born 31/07/1991–01/04/1997, who took part in the SPARCLE study at age 8–12 (SPARCLE 1) and again at 13–17 years (SPARCLE 2). Participants were randomly sampled from population registers of children with CP in eight European regions; one further region recruited from multiple sources. Data about environment were captured with the European Child Environment Questionnaire (60 items). Differences in availability of environmental features between childhood and adolescence were assessed using McNemar’s test; differences between regions were assessed by ranking regions. Differences in availability between regions were assessed by ranking regions.
Results
For seven environmental features significantly (p < 0.01) fewer individuals needed the feature in SPARCLE 2 than in SPARCLE 1, whilst for two features more individuals needed the feature. Nine features in SPARCLE 1 and six features in SPARCLE 2 were available to less than half the participants who needed them. Eight features showed significantly (p < 0.01) higher availability in SPARCLE 2 than in SPARCLE 1 (enlarged rooms, adapted toilet, modified kitchen and hoists at home, adapted toilets and lifts at school, an adequate vehicle, grants for home modifications) while none showed significantly lower availability. The relative rankings of the better and less good regions persisted from the age 8–12 year age group to the 13–17 year age group.
Conclusions
Needed environmental features are unavailable to many children at ages 8–12 and 13–17 years. This lack of availability is more pronounced in some regions than others, which probably results from their policy, legislative and statutory frameworks.
000135754 536__ $$9info:eu-repo/grantAgreement/EC/FP5/QLG5-CT-2002-00636/EU/Study or PARtipation of Children with Cerebral Palsy Living in Europe 1/SPARCLE1
000135754 540__ $$9info:eu-repo/semantics/openAccess$$aAll rights reserved$$uhttp://www.europeana.eu/rights/rr-f/
000135754 590__ $$a1.82$$b2017
000135754 591__ $$aEDUCATION, SPECIAL$$b8 / 40 = 0.2$$c2017$$dQ1$$eT1
000135754 591__ $$aREHABILITATION$$b19 / 69 = 0.275$$c2017$$dQ2$$eT1
000135754 592__ $$a0.898$$b2017
000135754 593__ $$aClinical Psychology$$c2017$$dQ1
000135754 593__ $$aDevelopmental and Educational Psychology$$c2017$$dQ2
000135754 655_4 $$ainfo:eu-repo/semantics/article$$vinfo:eu-repo/semantics/publishedVersion
000135754 700__ $$aColver, Allan
000135754 773__ $$g71 (2017), 1-10$$pRes. dev. disabil.$$tRESEARCH IN DEVELOPMENTAL DISABILITIES$$x0891-4222
000135754 8564_ $$s375392$$uhttps://zaguan.unizar.es/record/135754/files/texto_completo.pdf$$yVersión publicada
000135754 8564_ $$s1706625$$uhttps://zaguan.unizar.es/record/135754/files/texto_completo.jpg?subformat=icon$$xicon$$yVersión publicada
000135754 909CO $$ooai:zaguan.unizar.es:135754$$particulos$$pdriver
000135754 951__ $$a2024-07-05-12:56:00
000135754 980__ $$aARTICLE