000144718 001__ 144718
000144718 005__ 20240906111328.0
000144718 0247_ $$2doi$$a10.1016/j.oftale.2024.06.011
000144718 0248_ $$2sideral$$a139499
000144718 037__ $$aART-2024-139499
000144718 041__ $$aeng
000144718 100__ $$aLázaro, P.
000144718 245__ $$aPerception of patients with retinal pathology on aspects of visual function and their management
000144718 260__ $$c2024
000144718 5203_ $$aBackground and objective: Age-related macular degeneration (AMD) and diabetic retinopathy (DR) are highly prevalent.
Objective: To explore perceptions of patients with AMD or DR about the impact of the disease and treatment on their daily living activities.
Materials and methods: Semi-structured interviews with a questionnaire developed from validated patient reported outcomes questionnaires. The questionnaire consisted of 19 questions about the disease and 9 about the treatment. The questions (items) were answered on a scale from 1 to 9. In addition, the patient interviewed was invited to make free comments on each question. Nine patients with AMD and 9 with DR were interviewed by videoconference or telephone call. A quantitative analysis of the responses and a qualitative analysis of the comments were carried out.
Results: The most relevant item for patients with AMD or DR is "Recognize people when they are nearby", and "Read text in normal size font in a newspaper or book", followed, in patients with AMD, by "Do things what you would like" and, in patients with DR, "Feeling frustrated by the vision problems." Regarding the treatment, the most relevant aspects for both groups is that the treatment works and receiving appropriate information before and after the treatment. The qualitative comments were focused to the disease, the treatment, and to the role of doctors and the health system.
Conclusion: Quantitative responses and free comments can be useful to improve the care of patients with AMD or DR by physicians and the health system.
000144718 540__ $$9info:eu-repo/semantics/closedAccess$$aAll rights reserved$$uhttp://www.europeana.eu/rights/rr-f/
000144718 655_4 $$ainfo:eu-repo/semantics/article$$vinfo:eu-repo/semantics/publishedVersion
000144718 700__ $$aBlasco, A.J.
000144718 700__ $$aContreras, I.
000144718 700__ $$aGonzález, R.
000144718 700__ $$aZulueta, J.
000144718 700__ $$0(orcid)0000-0003-0349-9997$$aPinilla, I.$$uUniversidad de Zaragoza
000144718 7102_ $$11013$$2646$$aUniversidad de Zaragoza$$bDpto. Cirugía$$cÁrea Oftalmología
000144718 773__ $$g(2024), [9 pp.]$$pArch. Soc. Esp. Oftalmol. (Engl. ed.)$$tArchivos de la Sociedad Española de Oftalmología (English Edition)$$x2173-5794
000144718 8564_ $$s389802$$uhttps://zaguan.unizar.es/record/144718/files/texto_completo.pdf$$yVersión publicada
000144718 8564_ $$s2160601$$uhttps://zaguan.unizar.es/record/144718/files/texto_completo.jpg?subformat=icon$$xicon$$yVersión publicada
000144718 909CO $$ooai:zaguan.unizar.es:144718$$particulos$$pdriver
000144718 951__ $$a2024-09-06-10:24:42
000144718 980__ $$aARTICLE