000148801 001__ 148801
000148801 005__ 20250121150754.0
000148801 0247_ $$2doi$$a10.1017/cts.2020.45
000148801 0248_ $$2sideral$$a138740
000148801 037__ $$aART-2020-138740
000148801 041__ $$aeng
000148801 100__ $$aMinor, Brittany C.
000148801 245__ $$aDevelopment and implementation of a community-based research network
000148801 260__ $$c2020
000148801 5060_ $$aAccess copy available to the general public$$fUnrestricted
000148801 5203_ $$aIntroduction:
People aging with long-term physical disabilities (PAwLTPD), meaning individuals with onset of disability from birth through midlife, often require long-term support services (LTSS) to remain independence. The LTSS system is fragmented into aging and disability organizations with little communication between them. In addition, there are currently no evidence-based LTSS-type programs listed on the Administration for Community Living website that have been demonstrated to be effective for PAwLTPD. Because of these gaps, we have developed a community-based research network (CBRN), drawing on the practice-based research network model (PBRN), to bring together aging and disability organizations to address the lack of evidence-based programs for PAwLTPD.
Materials and Methods:
Community-based organizations serving PAwLTPD across the state of Missouri were recruited to join the CBRN. A formative process evaluation of the network was conducted after a year to evaluate the effectiveness of the network.
Results:
Nine community-based organizations across the state of Missouri joined the CBRN. CBRN members include three centers for independent living (CILs), three area agencies on aging (AAAs), one CIL/AAA hybrid, one non-CIL disability organization, and one non-AAA aging organization. To date, we have held seven meetings, provided educational opportunities for CBRN members, and launched an inaugural research study within the CBRN. Formative evaluation data indicate that CBRN members feel that participation in the CBRN is beneficial.
Conclusion:
The PBRN model appears to be a feasible framework for use with community-based organizations to facilitate communication between agencies and to support research aimed at addressing the needs of PAwLTPD.
000148801 540__ $$9info:eu-repo/semantics/openAccess$$aby$$uhttp://creativecommons.org/licenses/by/3.0/es/
000148801 592__ $$a0.125$$b2020
000148801 593__ $$aMedicine (miscellaneous)$$c2020$$dQ4
000148801 655_4 $$ainfo:eu-repo/semantics/article$$vinfo:eu-repo/semantics/publishedVersion
000148801 700__ $$aDashner, Jessica
000148801 700__ $$0(orcid)0000-0002-0235-3104$$aEspín Tello, Sandra M.
000148801 700__ $$aBollinger, Rebecca
000148801 700__ $$aKeglovits, Marian
000148801 700__ $$aStowe, James
000148801 700__ $$aCampbell, Margaret
000148801 700__ $$aStark, Susan L.
000148801 773__ $$g4, 6 (2020), 508-514$$tJournal of Clinical and Translational Science$$x2059-8661
000148801 8564_ $$s359855$$uhttps://zaguan.unizar.es/record/148801/files/texto_completo.pdf$$yVersión publicada
000148801 8564_ $$s3318260$$uhttps://zaguan.unizar.es/record/148801/files/texto_completo.jpg?subformat=icon$$xicon$$yVersión publicada
000148801 909CO $$ooai:zaguan.unizar.es:148801$$particulos$$pdriver
000148801 951__ $$a2025-01-21-14:45:53
000148801 980__ $$aARTICLE