@article{Chernyshov:150676,
author = "Chernyshov, Pavel V. and Finlay, Andrew Y. and
Tomás-Aragonés, Lucia and Poot, Francoise and Murrell,
Dedee F. and Pustisek, Nives and Svensson, Ake and Marron,
Servando E. and Sampogna, Francesca and Bewley, Anthony and
Salavastru, Carmen and Koumaki, Dimitra and Suru, Alina and
Yordanova, Ivelina A. and Zemskov, Serhiy and Tsymbaliuk,
Ruslan and Ostapko, Olena and Augustin, Matthias and Abeni,
Damiano and Szepietowski, Jacek C. and Jemec, Gregor B.",
title = "{Quality-of-life measurement in epidermolysis bullosa.
Position statement of the European Academy of Dermatology
and Venereology task force on quality of life and
patient-oriented outcomes and external experts}",
year = "2025",
}