Quality-of-life measurement in epidermolysis bullosa. Position statement of the European Academy of Dermatology and Venereology task force on quality of life and patient-oriented outcomes and external experts

Chernyshov, Pavel V. Finlay, Andrew Y. Tomás-Aragonés, Lucia Poot, Francoise Murrell, Dedee F. Pustisek, Nives Svensson, Ake Marron, Servando E. Sampogna, Francesca Bewley, Anthony Salavastru, Carmen Koumaki, Dimitra Suru, Alina Yordanova, Ivelina A. Zemskov, Serhiy Tsymbaliuk, Ruslan Ostapko, Olena Augustin, Matthias Abeni, Damiano Szepietowski, Jacek C. Jemec, Gregor B. Quality-of-life measurement in epidermolysis bullosa. Position statement of the European Academy of Dermatology and Venereology task force on quality of life and patient-oriented outcomes and external experts

Int. j. dermatol.

10.1111/ijd.17668 2025

2025