000151416 001__ 151416
000151416 005__ 20251017144642.0
000151416 0247_ $$2doi$$a10.2196/55023
000151416 0248_ $$2sideral$$a143079
000151416 037__ $$aART-2025-143079
000151416 041__ $$aeng
000151416 100__ $$aJiménez-Díaz, Alba
000151416 245__ $$aDigital Health Program to Support Family Caregivers of Children Undergoing Growth Hormone Therapy: Qualitative Feasibility Study
000151416 260__ $$c2025
000151416 5060_ $$aAccess copy available to the general public$$fUnrestricted
000151416 5203_ $$aBackground:
Caregivers of children with growth hormone deficiency often face emotional challenges (eg, stress) associated with their children’s health conditions. This psychological burden might affect children’s adherence to treatment and hinder their health-related quality of life (HrQoL). This assumption is leading to seriously considering multidimensional clinical approaches to pediatric health conditions where the emotional well-being of caregivers should be accounted for to optimize children’s health outcomes. Novel mobile health (mHealth) solutions based on emotional and behavioral change techniques can play a promising role because they are increasingly used within different health areas to support adaptive psychological functioning. However, whether and how mHealth solutions of this type of emotional well-being support caregivers of children with growth-related problems is an issue that needs to be clarified.
Objective:
This study aimed to gather qualitative information to better understand individualized experiences of caregiving of children undergoing growth hormone therapy (GHt) and perceived barriers or facilitators for the adoption of an mHealth solution called Adhera Caring Digital Program (ACDP).
Methods:
A total of 10 family caregivers were recruited at Miguel Servet Children’s Hospital, and they engaged with the ACDP for 1 month. The ACDP is a mobile-based digital intervention focused on promoting the overall well-being of family caregivers which provides access to personalized education, motivational mobile-based messages, and mental well-being exercises such as mindfulness or respiratory exercises. Subsequently, an individual semistructured interview was performed to gather qualitative user experience information.
Results:
The digital intervention was well-received. The ACDP was found to be useful, easy to use, and understandable, addressing all the difficulties expressed by caregivers. It was also noted to be particularly helpful at the beginning of the treatment and, for some families, became a natural tool that strengthened the parent-child relationship.
Conclusions:
The ACDP is a promising and well-accepted tool that enhances the experience of patients and caregivers. It improves the management of growth hormone deficiency and promotes the overall well-being of family caregivers.
000151416 540__ $$9info:eu-repo/semantics/openAccess$$aby$$uhttps://creativecommons.org/licenses/by/4.0/deed.es
000151416 655_4 $$ainfo:eu-repo/semantics/article$$vinfo:eu-repo/semantics/publishedVersion
000151416 700__ $$aPierantonelli, Maitena
000151416 700__ $$aMorte Coscolín, Patricia
000151416 700__ $$aSalinas-Uhalte, Amaia
000151416 700__ $$aQuer-Palomas, Silvia
000151416 700__ $$aRivera-Romero, Octavio
000151416 700__ $$0(orcid)0000-0001-6987-6607$$aHerrero, Rocío$$uUniversidad de Zaragoza
000151416 700__ $$aFernández-Luque, Luis
000151416 700__ $$aBaños, Rosa
000151416 700__ $$aBerrios, Ricardo C
000151416 700__ $$ade Arriba, Antonio
000151416 7102_ $$14009$$2680$$aUniversidad de Zaragoza$$bDpto. Psicología y Sociología$$cÁrea Person.Eval.Trat.Psicoló.
000151416 773__ $$g8 (2025), e55023 [14 pp.]$$tJMIR Pediatrics and Parenting$$x2561-6722
000151416 8564_ $$s619313$$uhttps://zaguan.unizar.es/record/151416/files/texto_completo.pdf$$yVersión publicada
000151416 8564_ $$s2437364$$uhttps://zaguan.unizar.es/record/151416/files/texto_completo.jpg?subformat=icon$$xicon$$yVersión publicada
000151416 909CO $$ooai:zaguan.unizar.es:151416$$particulos$$pdriver
000151416 951__ $$a2025-10-17-14:32:34
000151416 980__ $$aARTICLE