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<dc:dc xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:invenio="http://invenio-software.org/elements/1.0" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd"><dc:identifier>doi:10.1177/1756284819847034</dc:identifier><dc:language>eng</dc:language><dc:creator>Chaparro, M.</dc:creator><dc:creator>Barreiro-de Acosta, M.</dc:creator><dc:creator>Benítez, J.M.</dc:creator><dc:creator>Cabriada, J.L.</dc:creator><dc:creator>Casanova, M.J.</dc:creator><dc:creator>Ceballos, D.</dc:creator><dc:creator>Esteve, M.</dc:creator><dc:creator>Fernández, H.</dc:creator><dc:creator>Ginard, D.</dc:creator><dc:creator>Gomollón, F.</dc:creator><dc:creator>Lorente, R.</dc:creator><dc:creator>Nos, P.</dc:creator><dc:creator>Riestra, S.</dc:creator><dc:creator>Rivero, M.</dc:creator><dc:creator>Robledo, P.</dc:creator><dc:creator>Rodríguez, C.</dc:creator><dc:creator>Sicilia, B.</dc:creator><dc:creator>Torrella, E.</dc:creator><dc:creator>Garre, A.</dc:creator><dc:creator>García-Esquinas, E.</dc:creator><dc:creator>Rodríguez-Artalejo, F.</dc:creator><dc:creator>Gisbert, J.P.</dc:creator><dc:creator>Alfambra, E.</dc:creator><dc:title>EpidemIBD: rationale and design of a large-scale epidemiological study of inflammatory bowel disease in Spain</dc:title><dc:identifier>ART-2019-115097</dc:identifier><dc:description>Background: Inflammatory bowel disease (IBD) is associated with a considerable burden to the patient and society. However, current data on IBD incidence and burden are limited because of the paucity of nationwide epidemiological studies, heterogeneous designs, and a low number of participating centers and sample size. The EpidemIBD study is a large-scale investigation to provide an accurate assessment of the incidence of IBD in Spain, as well as treatment patterns and outcomes. Methods: This multicenter, population-based incidence cohort study included patients aged &gt;18 years with IBD (Crohn’s disease, ulcerative colitis, or unclassified IBD) diagnosed during 2017 in 108 hospitals in Spain, covering 50% of the Spanish population. Each participating patient will attend 10 clinic visits during 5 years of follow up. Demographic data, IBD characteristics and family history, complications, treatments, surgeries, and hospital admissions will be recorded. Results: The EpidemIBD study is the first large-scale nationwide study to investigate the incidence of IBD in Spain. Enrollment is now completed and 3627 patients are currently being followed up. Conclusions: The study has been designed to overcome many of the limitations of previous European studies into IBD incidence by prospectively recruiting a large number of patients from all regions of Spain. In addition to epidemiological information about the burden of IBD, the 5-year follow-up period will also provide information on treatment patterns, and the natural history and financial burden of IBD.</dc:description><dc:date>2019</dc:date><dc:source>http://zaguan.unizar.es/record/86405</dc:source><dc:doi>10.1177/1756284819847034</dc:doi><dc:identifier>http://zaguan.unizar.es/record/86405</dc:identifier><dc:identifier>oai:zaguan.unizar.es:86405</dc:identifier><dc:relation>info:eu-repo/grantAgreement/ES/ISCIII/FIS/PI16-01296</dc:relation><dc:relation>info:eu-repo/grantAgreement/ES/ISCIII/FIS/PI17-00143</dc:relation><dc:identifier.citation>Therapeutic Advances in Gastroenterology 12 (2019), 1-11</dc:identifier.citation><dc:rights>by-nc</dc:rights><dc:rights>http://creativecommons.org/licenses/by-nc/3.0/es/</dc:rights><dc:rights>info:eu-repo/semantics/openAccess</dc:rights></dc:dc>

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