000098422 001__ 98422
000098422 005__ 20210128133202.0
000098422 0248_ $$2sideral$$a122184
000098422 037__ $$aART-2019-122184
000098422 041__ $$aeng
000098422 100__ $$0(orcid)0000-0001-5632-0351$$aMarron, S.E.
000098422 245__ $$aQuality of life in hidradenitis suppurativa: psychometric properties of HSQOL-24
000098422 260__ $$c2019
000098422 5060_ $$aAccess copy available to the general public$$fUnrestricted
000098422 5203_ $$aP14
Introduction: Hidradenitis Suppurativa (HS) has been associated with impaired quality of life (QoL). There are various measuring systems to assess physical severity; however, there are no specific QoL questionnaires for this disease in the Spanish language.
Objective: To develop and validate a disease-specific instrument to measure QoL in patients with HS.
Methods: A literature search was carried out to prepare a semi structured interview for patients with HS, as well as a Delphi expert consensus among health professionals. The validation with a sample of 130 patients is presented. The preliminary validation of the HSQoL-24 was passed twice to a group of 30 patients with 30 ± 10 days of interval. The DLQI and the Skindex-29 were used for its validation.
Results: Cronbach alpha 0.87 indicates a good internal consistency of the questionnaire. The intraclass correlation coefficient (ICC) with the DLQI was 0.70 (p-value) (< 0.001), and 0.87 (p-value) (< 0.001) with the Skindex-29.
Conclusions: The HSQoL-24 is the first specific self-administered questionnaire to assess QoL in patients with HS in Spanish. It is user friendly and easy to. This study demonstrates the excellent properties of the instrument: comprehensibility, reliability (test-retest), internal consistency, validity, comparison with DLQI and SKINDEX-29, and discriminative capacity.
000098422 540__ $$9info:eu-repo/semantics/openAccess$$aby-nc$$uhttp://creativecommons.org/licenses/by-nc/3.0/es/
000098422 590__ $$a4.016$$b2019
000098422 591__ $$aDERMATOLOGY$$b7 / 68 = 0.103$$c2019$$dQ1$$eT1
000098422 592__ $$a1.01$$b2019
000098422 593__ $$aMedicine (miscellaneous)$$c2019$$dQ1
000098422 593__ $$aDermatology$$c2019$$dQ1
000098422 655_4 $$ainfo:eu-repo/semantics/conferenceObject$$vinfo:eu-repo/semantics/publishedVersion
000098422 700__ $$aPalma-Ruiz, A.M.
000098422 700__ $$aCerro-Muñoz, P.A.
000098422 700__ $$aMorales-Callaghan, A.M.
000098422 700__ $$0(orcid)0000-0002-1870-8846$$aSimal-Gil, E.$$uUniversidad de Zaragoza
000098422 700__ $$0(orcid)0000-0001-8034-3617$$aGilaberte-Calzada, Y.$$uUniversidad de Zaragoza
000098422 700__ $$aGarcia Latasa de Aranibar, F.J.$$uUniversidad de Zaragoza
000098422 700__ $$aAlcalde-Herrero, V.M.
000098422 700__ $$aFuentelsaz del Barrio, M.V.
000098422 700__ $$aGracia-Cazana, T.
000098422 700__ $$0(orcid)0000-0003-1917-6906$$aTomas-Aragones, L.$$uUniversidad de Zaragoza
000098422 7102_ $$14009$$2735$$aUniversidad de Zaragoza$$bDpto. Psicología y Sociología$$cÁrea Psicolog.Evolut.Educac
000098422 7102_ $$11007$$2183$$aUniversidad de Zaragoza$$bDpto. Medicina, Psiqu. y Derm.$$cÁrea Dermatología
000098422 773__ $$g99, 8 (2019), 751$$pActa derm.-venereol.$$tACTA DERMATO-VENEREOLOGICA$$x0001-5555
000098422 85641 $$uhttps://www.medicaljournals.se/acta/download/10.2340/00015555-3228/$$zTexto completo de la revista
000098422 8564_ $$s88579$$uhttps://zaguan.unizar.es/record/98422/files/texto_completo.pdf$$yVersión publicada
000098422 8564_ $$s4176705$$uhttps://zaguan.unizar.es/record/98422/files/texto_completo.jpg?subformat=icon$$xicon$$yVersión publicada
000098422 909CO $$ooai:zaguan.unizar.es:98422$$particulos$$pdriver
000098422 951__ $$a2021-01-28-12:42:35
000098422 980__ $$aARTICLE