<?xml version="1.0" encoding="UTF-8"?>
<collection>
<dc:dc xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:invenio="http://invenio-software.org/elements/1.0" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd"><dc:language>eng</dc:language><dc:creator>Marron, S.E.</dc:creator><dc:creator>Palma-Ruiz, A.M.</dc:creator><dc:creator>Cerro-Muñoz, P.A.</dc:creator><dc:creator>Morales-Callaghan, A.M.</dc:creator><dc:creator>Simal-Gil, E.</dc:creator><dc:creator>Gilaberte-Calzada, Y.</dc:creator><dc:creator>Garcia Latasa de Aranibar, F.J.</dc:creator><dc:creator>Alcalde-Herrero, V.M.</dc:creator><dc:creator>Fuentelsaz del Barrio, M.V.</dc:creator><dc:creator>Gracia-Cazana, T.</dc:creator><dc:creator>Tomas-Aragones, L.</dc:creator><dc:title>Quality of life in hidradenitis suppurativa: psychometric properties of HSQOL-24</dc:title><dc:identifier>ART-2019-122184</dc:identifier><dc:description>P14
Introduction: Hidradenitis Suppurativa (HS) has been associated with impaired quality of life (QoL). There are various measuring systems to assess physical severity; however, there are no specific QoL questionnaires for this disease in the Spanish language. 
Objective: To develop and validate a disease-specific instrument to measure QoL in patients with HS. 
Methods: A literature search was carried out to prepare a semi structured interview for patients with HS, as well as a Delphi expert consensus among health professionals. The validation with a sample of 130 patients is presented. The preliminary validation of the HSQoL-24 was passed twice to a group of 30 patients with 30 ± 10 days of interval. The DLQI and the Skindex-29 were used for its validation. 
Results: Cronbach alpha 0.87 indicates a good internal consistency of the questionnaire. The intraclass correlation coefficient (ICC) with the DLQI was 0.70 (p-value) (&lt; 0.001), and 0.87 (p-value) (&lt; 0.001) with the Skindex-29. 
Conclusions: The HSQoL-24 is the first specific self-administered questionnaire to assess QoL in patients with HS in Spanish. It is user friendly and easy to. This study demonstrates the excellent properties of the instrument: comprehensibility, reliability (test-retest), internal consistency, validity, comparison with DLQI and SKINDEX-29, and discriminative capacity.</dc:description><dc:date>2019</dc:date><dc:source>http://zaguan.unizar.es/record/98422</dc:source><dc:identifier>http://zaguan.unizar.es/record/98422</dc:identifier><dc:identifier>oai:zaguan.unizar.es:98422</dc:identifier><dc:identifier.citation>ACTA DERMATO-VENEREOLOGICA 99, 8 (2019), 751</dc:identifier.citation><dc:rights>by-nc</dc:rights><dc:rights>http://creativecommons.org/licenses/by-nc/3.0/es/</dc:rights><dc:rights>info:eu-repo/semantics/openAccess</dc:rights></dc:dc>

</collection>