98422 20210128133202.0 sideral 122184 ART-2019-122184 eng (orcid)0000-0001-5632-0351 Marron, S.E. Quality of life in hidradenitis suppurativa: psychometric properties of HSQOL-24 2019 Access copy available to the general public Unrestricted P14 Introduction: Hidradenitis Suppurativa (HS) has been associated with impaired quality of life (QoL). There are various measuring systems to assess physical severity; however, there are no specific QoL questionnaires for this disease in the Spanish language. Objective: To develop and validate a disease-specific instrument to measure QoL in patients with HS. Methods: A literature search was carried out to prepare a semi structured interview for patients with HS, as well as a Delphi expert consensus among health professionals. The validation with a sample of 130 patients is presented. The preliminary validation of the HSQoL-24 was passed twice to a group of 30 patients with 30 ± 10 days of interval. The DLQI and the Skindex-29 were used for its validation. Results: Cronbach alpha 0.87 indicates a good internal consistency of the questionnaire. The intraclass correlation coefficient (ICC) with the DLQI was 0.70 (p-value) (< 0.001), and 0.87 (p-value) (< 0.001) with the Skindex-29. Conclusions: The HSQoL-24 is the first specific self-administered questionnaire to assess QoL in patients with HS in Spanish. It is user friendly and easy to. This study demonstrates the excellent properties of the instrument: comprehensibility, reliability (test-retest), internal consistency, validity, comparison with DLQI and SKINDEX-29, and discriminative capacity. info:eu-repo/semantics/openAccess by-nc http://creativecommons.org/licenses/by-nc/3.0/es/ 4.016 2019 DERMATOLOGY 7 / 68 = 0.103 2019 Q1 T1 1.01 2019 Medicine (miscellaneous) 2019 Q1 Dermatology 2019 Q1 info:eu-repo/semantics/conferenceObject info:eu-repo/semantics/publishedVersion Palma-Ruiz, A.M. Cerro-Muñoz, P.A. Morales-Callaghan, A.M. (orcid)0000-0002-1870-8846 Simal-Gil, E. Universidad de Zaragoza (orcid)0000-0001-8034-3617 Gilaberte-Calzada, Y. Universidad de Zaragoza Garcia Latasa de Aranibar, F.J. Universidad de Zaragoza Alcalde-Herrero, V.M. Fuentelsaz del Barrio, M.V. Gracia-Cazana, T. (orcid)0000-0003-1917-6906 Tomas-Aragones, L. Universidad de Zaragoza 4009 735 Universidad de Zaragoza Dpto. Psicología y Sociología Área Psicolog.Evolut.Educac 1007 183 Universidad de Zaragoza Dpto. Medicina, Psiqu. y Derm. Área Dermatología 99, 8 (2019), 751 Acta derm.-venereol. ACTA DERMATO-VENEREOLOGICA 0001-5555 https://www.medicaljournals.se/acta/download/10.2340/00015555-3228/ Texto completo de la revista 88579 http://zaguan.unizar.es/record/98422/files/texto_completo.pdf Versión publicada 4176705 http://zaguan.unizar.es/record/98422/files/texto_completo.jpg?subformat=icon icon Versión publicada oai:zaguan.unizar.es:98422 articulos driver 2021-01-28-12:42:35 ARTICLE