Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology-specific instruments

Sampogna, F. ; Finlay, A. ; Salek, S. ; Chernyshov, P. ; Dalgard, F. ; Evers, A. ; Linder, D. ; Manolache, L. ; Marron, S. ; Poot, F. ; Spillekom-van Koulil, S. ; Svensson, A. ; Szepietowski, J. ; Tomas-Aragones, L. (Universidad de Zaragoza) ; Abeni, D.

Resumen: The patient is the centre of a web of relationships and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents’ Index QoL Atopic Dermatitis, PiQoL-AD; QoL in Primary Caregivers of children with Atopic Dermatitis, QPCAD; Childhood Atopic Dermatits Impact Scale, CADIS), two measured the impact of psoriasis in family members (Psoriasis Family Index, PFI; FamilyPso)...

Idioma: Inglés

Año: 2017

Publicado en: ACTA DERMATO-VENEREOLOGICA 97, 7 (2017), OP8 [880]
ISSN: 0001-5555

Originalmente disponible en: Texto completo de la revista

Factor impacto JCR: 3.127 (2017)

Categ. JCR: DERMATOLOGY rank: 12 / 63 = 0.19 (2017) - Q1 - T1

Factor impacto SCIMAGO: 1.089 - Medicine (miscellaneous) (Q1) - Dermatology (Q1)

Tipo y forma: Artículo (Versión definitiva)

Área (Departamento): Área Psicolog.Evolut.Educac (Dpto. Psicología y Sociología)