Quality of life in hidradenitis suppurativa: psychometric properties of HSQOL-24
Marron, S.E. ; Palma-Ruiz, A.M. ; Cerro-Muñoz, P.A. ; Morales-Callaghan, A.M. ; Simal-Gil, E. (Universidad de Zaragoza) ; Gilaberte-Calzada, Y. (Universidad de Zaragoza) ; Garcia Latasa de Aranibar, F.J. (Universidad de Zaragoza) ; Alcalde-Herrero, V.M. ; Fuentelsaz del Barrio, M.V. ; Gracia-Cazana, T. ; Tomas-Aragones, L. (Universidad de Zaragoza)
Resumen: P14
Introduction: Hidradenitis Suppurativa (HS) has been associated with impaired quality of life (QoL). There are various measuring systems to assess physical severity; however, there are no specific QoL questionnaires for this disease in the Spanish language.
Objective: To develop and validate a disease-specific instrument to measure QoL in patients with HS.
Methods: A literature search was carried out to prepare a semi structured interview for patients with HS, as well as a Delphi expert consensus among health professionals. The validation with a sample of 130 patients is presented. The preliminary validation of the HSQoL-24 was passed twice to a group of 30 patients with 30 ± 10 days of interval. The DLQI and the Skindex-29 were used for its validation.
Results: Cronbach alpha 0.87 indicates a good internal consistency of the questionnaire. The intraclass correlation coefficient (ICC) with the DLQI was 0.70 (p-value) (< 0.001), and 0.87 (p-value) (< 0.001) with the Skindex-29.
Conclusions: The HSQoL-24 is the first specific self-administered questionnaire to assess QoL in patients with HS in Spanish. It is user friendly and easy to. This study demonstrates the excellent properties of the instrument: comprehensibility, reliability (test-retest), internal consistency, validity, comparison with DLQI and SKINDEX-29, and discriminative capacity.
Idioma: Inglés
Año: 2019
Publicado en: ACTA DERMATO-VENEREOLOGICA 99, 8 (2019), 751
ISSN: 0001-5555
Originalmente disponible en: Texto completo de la revista
Factor impacto JCR: 4.016 (2019)
Categ. JCR: DERMATOLOGY rank: 7 / 68 = 0.103 (2019) - Q1 - T1
Factor impacto SCIMAGO: 1.01 - Medicine (miscellaneous) (Q1) - Dermatology (Q1)
Tipo y forma: Congress (Published version)
Área (Departamento): Área Psicolog.Evolut.Educac (Dpto. Psicología y Sociología)
Área (Departamento): Área Dermatología (Dpto. Medicina, Psiqu. y Derm.)
You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use. You may not use the material for commercial purposes.
Exportado de SIDERAL (2021-01-28-12:42:35)
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Introduction: Hidradenitis Suppurativa (HS) has been associated with impaired quality of life (QoL). There are various measuring systems to assess physical severity; however, there are no specific QoL questionnaires for this disease in the Spanish language.
Objective: To develop and validate a disease-specific instrument to measure QoL in patients with HS.
Methods: A literature search was carried out to prepare a semi structured interview for patients with HS, as well as a Delphi expert consensus among health professionals. The validation with a sample of 130 patients is presented. The preliminary validation of the HSQoL-24 was passed twice to a group of 30 patients with 30 ± 10 days of interval. The DLQI and the Skindex-29 were used for its validation.
Results: Cronbach alpha 0.87 indicates a good internal consistency of the questionnaire. The intraclass correlation coefficient (ICC) with the DLQI was 0.70 (p-value) (< 0.001), and 0.87 (p-value) (< 0.001) with the Skindex-29.
Conclusions: The HSQoL-24 is the first specific self-administered questionnaire to assess QoL in patients with HS in Spanish. It is user friendly and easy to. This study demonstrates the excellent properties of the instrument: comprehensibility, reliability (test-retest), internal consistency, validity, comparison with DLQI and SKINDEX-29, and discriminative capacity.
Idioma: Inglés
Año: 2019
Publicado en: ACTA DERMATO-VENEREOLOGICA 99, 8 (2019), 751
ISSN: 0001-5555
Originalmente disponible en: Texto completo de la revista
Factor impacto JCR: 4.016 (2019)
Categ. JCR: DERMATOLOGY rank: 7 / 68 = 0.103 (2019) - Q1 - T1
Factor impacto SCIMAGO: 1.01 - Medicine (miscellaneous) (Q1) - Dermatology (Q1)
Tipo y forma: Congress (Published version)
Área (Departamento): Área Psicolog.Evolut.Educac (Dpto. Psicología y Sociología)
Área (Departamento): Área Dermatología (Dpto. Medicina, Psiqu. y Derm.)
You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use. You may not use the material for commercial purposes. Exportado de SIDERAL (2021-01-28-12:42:35)
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